ME/cvs Vereniging

ME/cvs Vereniging is a patient association that represents the interests of (very severe) patients suffering from Myalgic Encephalomyelitis and their loved ones.

Focus Areas

The organisation’s work focuses on:

• Providing information about the disease ME, research and treatment methods
• Sharing information about the latest scientific developments
• Contributing to research, including participation in discussions and support for researchers within the government-funded ME/CFS research programme

Working Together at European Level

The organisation collaborates with the European ME Alliance through information-sharing, advocacy, and joint projects.

Key Achievements & Recent Initiatives

Key activities and initiatives include:

• Contribution to the demonstration in The Hague for rights for ME patients and other PAIS-related diseases (https://www.hetpaisprotest.nl/)
• Advocacy within the national disability framework
• Publication of newsletters

Support for Patients & Families

The association provides a range of support services, including:

• Website and social media channels
• An information telephone line and mailbox
• A magazine and a newsletter
• Support groups
• Actions that benefit caretakers

Support for Healthcare Professionals

Fight for ME disease to be recognized as a seriously debilitating physical condition, so that patients can access research, treatment and facilities.

MECVS Nederland

MECFS Netherlands is the patient organization for everyone with ME/CFS and their supporters.
We support each other for the best quality of life, increased understanding of our situation, and more insights into the causes and treatment methods.
We serve as the connecting link between everyone affected by ME/CFS and researchers, healthcare providers, and policymakers.
With practical information and hope for a future without symptoms, we have been working towards #meerbegrip (more understanding) for over 35 years.

Steungroep ME en Arbeidsongeschiktheid

The ME and Disability Support Group is the national patient organization that provides support to ME and CFS patients who experience difficulties in employment, education, disability and benefits as a result of their illness.
The support Group campaigns against the exclusion of incapacitated ME and CFS patients from disability benefits and strives to make work and education available to ME and CFS patients that are adapted to their capabilities.
The Support Group ME and Disability has been in existence since November 1994 and, from April 1995, as a foundation.

The Support Group consists largely of volunteers who deal with ME or CFS themselves, either as a patient or as a relative of a patient.

The Support Group's activities are financed by contributions from regular donors, sales of information materials and donations.

The ME and Disability Support Group is the national organization that provides support to ME and CFS patients who
experience difficulties in employment, education, disability and benefits as a result of their illness. The support Group campaigns against the exclusion of incapacitated ME and CFS patients from disability benefits and strives to make work and education available to ME and CFS patients that are adapted to their capabilities.